Huntington's Disease Support Group

Date or Time

The support groups sponsored by our Huntington’s Disease Center of Excellence meet online. All groups start at 6 p.m. Central Standard Time. On the second Thursday of the month, the group focuses on the needs unique to individuals who are gene positive and/or affected by symptoms of Huntington's disease. The fourth Thursday of the month is focused upon the needs of care partners of individuals affected by Huntington's disease.

Our Huntington’s disease social worker hosts a monthly support group for anyone impacted by Huntington’s. This includes: 

  • People who have Huntington’s disease
  • People who take care of a loved one with Huntington’s 

Through this group, we aim to create an environment that encourages sharing, learning, and bonding with your peers. 

We sometimes bring in speakers who present on topics related to Huntington’s disease, such as:  

  • Financial planning
  • Long-term care planning
  • Nutrition therapy
  • Physical therapy 

Email [email protected] or call 1-319-384-9289 to learn more.

Recent Support Group Discussion

Financial Planning and HD

Learning about HD Research Options with HDSA