At a very young age, Kaelea Butterfield had problems breathing. After she was hospitalized five different times due to breathing trouble, her local doctor prescribed breathing treatments.
When she was in kindergarten, a teacher noticed Kaelea wasn’t breathing well and sent her to the school nurse. When multiple treatments didn’t help, the nurse called 911.
“There were probably 12 medicines, at least, running through all of the IVs,” remembers Kaelea’s mom, Kristin. “They were hitting her with a bunch of EpiPens® [epinephrine injections to open airways in the lungs] on the way [to the hospital] and nothing was working. She was starting to go into shock.”
Kaelea was taken to a Cedar Rapids hospital, but was soon airlifted to University of Iowa Stead Family Children’s Hospital for more specialized pediatric emergency care.
“The hospital in Cedar Rapids literally had no clue what to do with her,” recalls Kristin. “If it weren’t for UI Stead Family Children’s Hospital, she wouldn’t be alive right now.”
Her family learned Kaelea has severe, life-threatening asthma. Not only is she unable to breathe in enough oxygen during an episode, she’s unable to breathe out carbon dioxide as well.
“It’s almost like a slow, painful, suffocating-to-death type of episode,” says Kristin.
Two years later, in June 2012, Kaelea was rushed back to UI Stead Family Children’s Hospital under dire circumstances. Her symptoms had become so severe that by the time she arrived at the emergency department, no medications were helping.
“There were probably 25 doctors in the room,” says Kristin.
Kaelea required life support and was put on ECMO, or extracorporeal membrane oxygenation, which drains blood from the veins, adds oxygen and removes carbon dioxide, and then pumps the blood back through the body.
“Seeing Kaelea on ECMO was probably one of the most devastating events we’ve ever been through with any of our children or grandchildren,” says Victoria Meggers, Kaelea’s grandmother.
While Kaelea was in the hospital, pediatric pulmonologist Timothy Starner, MD, trained her family how to properly administer her inhaler and breathing treatments. He also taught them signs that indicate a breathing struggle, including rosy cheeks and sucked-in skin at her ribcage.
Kaelea was on ECMO for more than a week, and spent a total of 13 days in the hospital before she was able to return home. Today, she’s an outgoing 12-year-old who loves to paint her nails and play with her younger brother, Kohen, and little sister, Kintzee.
She’ll have to take daily medications and pay attention to her symptoms and overall health for the rest of her life, but Kaelea and her family are thankful they have a team of UI Stead Family Children’s Hospital specialists ready if they need them.
“Bringing my daughter to the medical staff in Iowa City was by far one of the best choices I could have ever made,” says Kristin. “They exhausted every option possible.”
“It was a life-changing experience for all of us,” adds Victoria. “They saved her life—that means everything to us.”