Parent Blog: Ashley Feldman
In their words
Kolby was transferred to UI Stead Family Children’s Hospital about 12 hours after he was born. The diagnosis was confirmed, and Kolby was scheduled for surgery the next day. They were able to repair his esophagus and trachea during the surgery. Kolby spent the next week sedated to allow his esophagus to heal together. He spent six weeks in the hospital recovering from his surgery and his premature birth.
He needed another surgery to repair hernias before he went home. Once he was bigger, they started casting to treat his club foot.
We met with her pediatric urologist before she was born to discuss what surgery would entail and develop a treatment plan after she was born. Hadley was taken to the NICU after she was born and awaited surgery. She had surgery to repair her bladder and pelvis three days after she was born. Hadley’s bladder was repaired, and she was placed in a spica cast. Hadley stayed in the hospital for two and a half weeks. She had her spica cast on for six weeks and is recovering from surgery.
The UI pediatric urology department has been amazing during this whole process with Hadley. Dr. Storm and his team have been extremely helpful and reassuring. He took the time to answer all of our questions about surgery, even when we weren’t sure if Hadley had exstrophy yet. He has been easily accessible since we came home and quickly answers all our questions. We are incredibly thankful for Dr. Storm and his team and the care they have given Hadley.
UI Stead Family Children’s Hospital has been amazing to our family. They have helped us bring home both of our children. The entire staff is incredibly helpful and willing to answer questions. The nurses make you feel like they are part of your family and that they care about your child as much as you do. The staff was so reassuring in some of the scariest times.”