Parent Blog: Sara Etringer
In their words
“Mya was born with a port wine stain birthmark. At her three-month well-check exam, her pediatrician referred us to University of Iowa Stead Family Children’s Hospital for a genetic evaluation with Dr. Serrano. Dr. Serrano immediately ordered an MRI and made an appointment with ophthalmology. Mya was diagnosed with Sturge-Weber syndrome in September 2012. Sturge-Weber can cause glaucoma and epilepsy.
At three months of age Mya saw Dr. Kwon in ophthalmology, and he did an emergency surgery on her eye. We feel that this likely saved Mya’s vision. She has glaucoma, so we monitor it very closely.
Mya has had 10 laser treatments with Dr. Ciliberto in dermatology to lighten her birthmark. We feel that they have made a significant difference.
Mya has been hospitalized multiple times with seizures. We see our neurologist and at this time Mya is doing amazing. She is a happy, healthy 4-year-old attending preschool this year.
We are so thankful to live so close to such an amazing medical team. Thank you, UI Stead Family Children’s Hospital, for the top-notch care we receive for our daughter!
We feel at home, even when we are hospitalized for weeks at a time. Unfortunately we had to be in a couple weeks around Christmastime two years ago. They had wonderful holiday events, and the spirit of Christmas was not lost!”