Bleeding disorders

What is comprehensive care?

The model of care used by HTC's is called comprehensive care.

  • The goal is to treat the whole person rather than just one aspect of the bleeding disorder.
  • It focuses on developing partnerships between patients, families, primary care doctors, and specialists

Our services

Our care team has:

  • Doctors
  • Nurses
  • Physical therapists
  • Dental hygienist
  • Social worker
  • Research coordinator
  • Genetic counselor

Comprehensive clinic visits often happen one time a year, or every other year for milder bleeding disorders. At each visit, the HTC staff works with the patient to make a treatment plan. The plan is given to the patient and is also shared with the patient’s other providers to help prevent bleeding complications. 

We also coordinate care with other departments, such as:

  • Infectious Disease
  • Hepatology
  • Orthopedics
  • Obstetrics and Gynecology

What is a bleeding disorder?

It is a medical condition that affects the body’s ability to form a clot. Most of the time when a person is hurt, the body helps stop the bleeding quickly by using:

  •   Blood cells called platelets
  •   Proteins called clotting factors

In people with bleeding disorders, either:

  •   The platelets do not work the right way or are low
  •   The clotting factors are low or missing

These cause bleeding problems, which can be mild to severe. Most bleeding disorders are inherited, but some are the result of a random spontaneous mutation. They can also be the result of certain conditions or side effects of some medicines.

Common bleeding disorders are:

  •   Hemophilia (factor VIII and factor IX deficiency)
  •   Von Willebrand disease
  •   Other factor deficiencies
  •   Platelet disorders 

What are hemophilia treatment centers (HTCs)?

  • HTCs are health care centers with specialists to treat all aspects of a person’s bleeding disorder.
  • HTCs get funding from the Health Resources Services Administration (HRSA) and the Centers for Disease Control and Prevention (CDC).
  • Studies of people with hemophilia show: People who get care from an HTC are much less likely to die or be in the hospital than people who do not get their care from an HTC. 

Resources

Last reviewed: 
October 2017

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