Transplant for end-stage heart failure gives Marcus new life and a new purpose: promoting organ donation
As his heart failure worsened over several years, Marcus Jones, of Waterloo, Iowa, expected to need a heart transplant someday. He didn’t expect it to happen at age 36.
But after heart problems sent him to his local hospital in September 2020, Marcus’ doctor referred him to the University of Iowa Heart and Vascular Center, where advanced heart failure cardiologist Michael C. Viray, MD, diagnosed him with end-stage heart failure.
Marcus needed a heart transplant as soon as possible. He lived through weeks of anxiety, cautious optimism, and health setbacks before the UI heart transplant surgery team performed a successful transplant in late October.
Throughout his rehabilitation, as his health returned and his life improved, Marcus devoted himself to spreading the word about organ donation. He wants to make sure others get the kind of lifesaving second chance he was so fortunate to receive.
“It was a blessing to get a heart—a blessing to be as young as I am,” Marcus says. “I recognized just how beautiful life is.”
Expert diagnosis detects a serious decline
Heart failure usually develops slowly over time, but the signs and symptoms of congestion from fluid build-up can come suddenly.
Heart failure happens when the heart muscle weakens or stiffens until it loses its ability to pump oxygen-rich blood to the body. Long-standing high blood pressure, coronary artery disease, diabetes, obesity, viral infections, and toxins such as alcohol and certain drugs are common contributors to heart failure.
When Marcus arrived at UI Hospitals & Clinics, Viray conducted a thorough evaluation to determine how serious his heart failure was.
An ultrasound showed the heart was weak. But his cardiac index—a parameter obtained during a heart catheterization that shows how well the heart delivers blood to body—was especially concerning.
“It was the lowest I’ve ever seen,” Dr. Viray says. “It indicated the heart was barely functioning.”
Further testing confirmed that Marcus needed a heart transplant.
“Young people with heart failure can feel good for several years before they reach a tipping point, after which they get sick fast.” Viray says.
A full life interrupted by heart failure
Marcus had battled heart failure for years. That didn’t stop him from getting the most out of life—raising his family while working as a human resources officer, attending graduate school, and enjoying time with his fiancee.
He took the right medications, exercised regularly, and ate a healthy diet. Yet his toddler could outrun him. Marcus knew his heart was getting weaker, and he feared he would miss some of the best moments of fatherhood.
Marcus struggled with anxiety as he tried to come to terms with his diagnosis. He says his visit with Anthony Panos, MD, director of heart transplant surgery at the UI, helped him begin to see the bigger picture.
‘Many highs and lows’
Although Marcus’ blood type gave him some advantage, the wait for a donor heart is never predictable.
“Dr. Panos prepared me to have many highs and lows,” Marcus says
A blood infection forced him off the waiting list for a week. Then, because his heart failure was so severe, cardiologists had to implant an intra-aortic balloon pump to help his heart pump more blood than it could on its own.
“I laid flat on my back for several days with the balloon pump, which was not easy,” he says.
Visitor restrictions during the pandemic prevented Marcus from seeing his son, but one day in October, a nurse saw him on a video call singing “Happy Birthday” to the toddler. With special permission, the nurse arranged a 30-minute visit with his son that brought Marcus a little joy during a difficult time.
“I hadn’t seen him for a month,” he says.
Feeling the improvement immediately
The next day, Marcus began the life he’d been looking forward to starting.
“From the first post-transplant day, I could feel the improvement with my heart,” Marcus says. “The team at the UI was so supportive and incredibly knowledgeable. I can’t say enough about the team who saved my life.”
He went home 30 days later and continued his cardiac rehabilitation—walking, biking, lifting light weights, and doing other exercises to recover and stay healthy.
He also launched an initiative called Heart Transplant Motivation. He has recorded a series of podcasts to tell his story and to advocate for organ donation.
“I tell anyone who is healthy, sign up to be an organ donor,” Marcus says. “It’s amazing how many lives organ donors can save.”