Waiting for your pancreas transplant

The official transplant waitlist is managed by the United Network for Organ Sharing (UNOS). UNOS maintains the list of all patients waiting for an organ transplant in the United States and organizes all the organs offered for patients waiting.  

You are free to list at more than one center within a region or in more than one region in the country if you can and think it will increase your chances of getting transplanted. 

The average wait time for a pancreas transplant varies according to a number of patient specific factors but may be as long as several years. These factors include: 

• Type of pancreas you are willing to accept 

• Blood type (O, A, B, AB) 

• Distance from transplant program to donor hospital 

• Antibody level (if you have been exposed to foreign proteins before–previous transplant, blood transfusions) 

• Other factors 

While you wait for your pancreas transplant it is important to maintain your overall health and receive routine health care. You will also need to visit the transplant clinic with your caregiver regularly for evaluation and ongoing education. 

• Physical exams 

• Dental exams 

• Cancer screenings 

• Vaccinations 

A patient can be made inactive or removed from the pancreas transplant waitlist entirely after they have been listed for many different reasons. The most important thing is to communicate with the transplant team throughout the waiting process. 

Reasons for being inactive or removed include: 

• Insurance issues 

• Unable to contact you 

• You are too sick/you are too well 

• Lack of caregiver support 

• Medical nonadherence 

• Personal choice 

• Substance abuse 

When you are waiting for a transplant, you need to be always prepared. It is okay to go on a trip or vacation, but you need to let the transplant team know in advance. Keeping the team informed of any major changes is important. 

Contact us if: 

• You are planning to move/vacation 

• Any changes to your health 

• Any changes to your health care team or insurance coverage 

• Your caregiver changes 

You should have a plan and a list of things to bring to the hospital ahead of time. Your caregiver will bring you so having everything ready is crucial. You need to be able to leave your home within one or two hours after you receive the call. 

• Loose fitting clothing 

• Childcare/pet care 

• Overnight bag packed 

• Cell phone 

• Toiletries 

• Books/e-reader or tablet/computer 

• Transportation 

• Insurance card 

• Current medication list