Skip to main content
Kid Captain nominations are now open!
Nominations are open Jan. 30 through March 6, 2023.
Learn how to nominate your child
  • Request an Appointment
  • MyChart
  • Pay a Bill or Get an Estimate
  • For Referring Providers
  • Explore UI Health Care
    • Adult Care
    • Pediatric Care
    • Cancer Center
    • Carver College of Medicine

Main Menu

  • Find a Provider
  • Pediatric Services
  • Locations
  • Your Child's Visit

More Menu

  • About Us
  • Contact Us
  • COVID-19
  • Donations
  • Educational Resources & Support Groups
  • Health Topics
  • News and Stories
  • Pediatric Clinical Trials
  • Share Your Child's Story
  • Find a Provider
  • Pediatric Services
  • Locations
  • Your Child's Visit
  • Request an Appointment
  • MyChart
  • Pay a Bill or Get an Estimate
  • For Referring Providers
  • Explore UI Health Care
    • Adult Care
    • Pediatric Care
    • Cancer Center
    • Carver College of Medicine
  • About Us
  • Contact Us
  • COVID-19
  • Donations
  • Educational Resources & Support Groups
  • Health Topics
  • News and Stories
  • Pediatric Clinical Trials
  • Share Your Child's Story
  • Neurology
    • Multidisciplinary Pediatric Headache Clinic
    • Neuromuscular Multispecialty Clinic
    • Pediatric Epilepsy
    • Tuberous sclerosis complex (TSC) care

Breadcrumb

  1. Home
  2. Services
  3. Tuberous sclerosis complex (TSC) care
Email Tuberous sclerosis complex (TSC) care
Share Tuberous sclerosis complex (TSC) care on Facebook
Share Tuberous sclerosis complex (TSC) care on Twitter
Share Tuberous sclerosis complex (TSC) care on LinkedIn
Print Tuberous sclerosis complex (TSC) care

Tuberous sclerosis complex (TSC) care

Request an Appointment
For all requests:
1-888-573-5437
  • Refer a Patient
  • Find a Provider
  • TSC Alliance

Tuberous sclerosis complex (TSC) is a genetic disease that can cause noncancerous tumors to grow in many different parts of the body, such as the skin, brain, kidneys, or other organs.

Some of the possible symptoms of TSC include intellectual disabilities or serious health problems, depending on where the tumors grow.

TSC is a lifelong condition, and its signs and symptoms vary from person to person and can change frequently. That’s why all people with TSC should have a long-term care plan that addresses their unique and changing needs during childhood and into adulthood.

Your care team in the TSC clinic at UI Stead Family Children’s Hospital includes physicians who specialize in all of the many areas of care required by TSC patients, including patients with serious or complex cases.

Our services also include genetic counseling and a dedicated program to help guide patients as they transition from pediatric care to adult care.

Tuberous sclerosis symptoms and diagnosis

TSC is a genetic disease. It’s usually inherited from a parent, although it’s also possible to be the first person in the family to have the condition.

Many people find out they have TSC after having seizures. Others may have birthmarks on their skin. Sometimes TSC is diagnosed before birth when a prenatal ultrasound discovers masses in the heart.

TSC can show up in many different places in the body and can cause many different kinds of health problems that require many different kinds of care.

Tuberous sclerosis treatment

UI Stead Family Children’s Hospital provides expert care for TSC patients, no matter where in the body the symptoms occur and no matter how minor or serious those symptoms are.

And because TSC’s signs and symptoms can change as a patient ages, our treatment plans include a schedule of periodic follow-up visits to take care of any new problems as they arise.

When TSC patients at UI Stead Family Children’s Hospital reach adulthood, we provide full support for their transition to the care they’ll need from the UI Health Care specialists who treat adults with TSC.

We provide coordinated, expert care so that people who have TSC can lead their healthiest life possible, with one place to go for all of their health and medical concerns.

 

Comprehensive TSC care

The UI Stead Family Children’s Hospital TSC clinic offers:

  • Care from the only TSC clinic in the state of Iowa recognized by the TSC Alliance
  • Epilepsy care from neurologists at Iowa’s only epilepsy center to be designated as a Level 4 epilepsy center by the National Association of Epilepsy Centers
  • Expert pediatric kidney care and the only pediatric kidney transplant program in the state
  • Skin care from a dermatologist who specializes in treating children and young adults
  • A genetic counselor and a board-certified pediatric medical geneticist to assist with diagnosis and help families determine whether other family members might be at risk for TSC
  • Specialty care from experts in cardiology, dentistry, developmental and behavioral pediatrics, endocrinology, gastroenterology, gynecology, hematology-oncology, neuropsychology, neurosurgery, ophthalmology, orthopedics, psychology, pulmonology, radiology, urology, and more. 

Sidebar content

  • Neurology
    • Multidisciplinary Pediatric Headache Clinic
    • Neuromuscular Multispecialty Clinic
    • Pediatric Epilepsy
    • Tuberous sclerosis complex (TSC) care

TSC research

The UI Stead Family Children’s Hospital TSC clinic is a research study site. These studies include:

  • TSC Alliance's Natural History Database
  • Biosample Repository

Our Care Team

Linda Cooper-Brown, PhD portrait

Linda
Cooper-Brown
PhD

  • Department of Pediatrics
  • Center for Disabilities and Development
4.64 out of 5 (102 ratings)
Todd Kopelman, PhD portrait

Todd
Kopelman
PhD

  • Department of Pediatrics
  • Psychiatry
  • Psychology
4.74 out of 5 (74 ratings)
Kelly M. Schieltz, PhD, BCBA-D portrait

Kelly M.
Schieltz
PhD, BCBA-D

  • Department of Pediatrics
  • Psychiatry
  • Psychology
  • Center for Disabilities and Development

Sophia Chung, MD portrait

Sophia
Chung
MD

Michael Ciliberto, MD portrait

Michael
Ciliberto
MD

  • Department of Pediatrics
  • Neurology
4.83 out of 5 (315 ratings)

Patricia Espe-Pfeifer, PhD portrait

Patricia
Espe-Pfeifer
PhD

  • Department of Pediatrics
  • Psychiatry
  • Psychology
4.82 out of 5 (33 ratings)

Douglas Storm, MD, FAAP portrait

Douglas
Storm
MD, FAAP

  • Department of Pediatrics
  • Urology
4.72 out of 5 (576 ratings)

Mohammad Amarneh, MBBS portrait

Mohammad
Amarneh
MBBS

  • Department of Pediatrics
  • Radiology
4.87 out of 5 (67 ratings)

T. Shawn Sato, MD portrait

T. Shawn
Sato
MD

  • Radiology

Alpa Sidhu, MBBS, PhD portrait

Alpa
Sidhu
MBBS, PhD

  • Department of Pediatrics
  • Genetics

Liuska Pesce, MD portrait

Liuska
Pesce
MD

  • Department of Pediatrics
  • Endocrinology
4.89 out of 5 (380 ratings)

Andrea L. Porter, MD portrait

Andrea L.
Porter
MD

  • Center for Disabilities and Development
4.63 out of 5 (167 ratings)

Heather Kowalski, MD portrait

Heather
Kowalski
MD

  • Orthopedics and Rehabilitation
4.77 out of 5 (460 ratings)

Sarina Martini, MD portrait

Sarina
Martini
MD

  • Obstetrics and Gynecology
4.86 out of 5 (432 ratings)

Nabeel Hamzeh, MD portrait

Nabeel
Hamzeh
MD

4.72 out of 5 (319 ratings)

Lyndsay Harshman, MD, MS portrait

Lyndsay
Harshman
MD, MS

  • Department of Pediatrics
  • Nephrology
4.96 out of 5 (35 ratings)

Kristen G. Berrebi, MD portrait

Kristen G.
Berrebi
MD

4.72 out of 5 (373 ratings)

Yasemen Eroglu, MD portrait

Yasemen
Eroglu
MD

  • Department of Pediatrics
  • Gastroenterology
4.36 out of 5 (226 ratings)

Alina Dumitrescu, MD portrait

Alina
Dumitrescu
MD

  • Ophthalmology and Visual Sciences
4.77 out of 5 (548 ratings)

Brian Dlouhy, MD portrait

Brian
Dlouhy
MD

  • Neurosurgery
4.41 out of 5 (337 ratings)

Stephanie Borst, MS, RD, LDN portrait

Stephanie
Borst
MS, RD, LDN

  • Department of Pediatrics
Not sure which Tuberous sclerosis complex (TSC) care provider is right for you?
When you call 1-888-573-5437 we'll help you find a provider who meets your needs.
Call 1-888-573-5437 Refer a Patient

Locations and Offices

Level 2: Pediatric Specialty Clinic

2800 John Pappajohn Pavilion (JPP)
Pediatric Public Elevators, Level 2
1-319-356-1828
Clinic
In University of Iowa Stead Family Children's Hospital
200 Hawkins Drive, Iowa City, IA 52242
Clinical Trials currently in progress
Browse all clinical trials in progress

200 Hawkins Drive
Iowa City, IA 52242
United States

1-888-573-5437
  • Your child's appointment
  • Directions and parking
  • See all locations
  • Facebook
  • Twitter
  • Youtube
  • Instagram

Patients & Visitors

  • Your child's visit
  • MyChart
  • Contact us
  • Find a provider
  • Browse medical services
  • Resources and support groups
  • News and patient stories
  • Share your child's story
  • Health topics

Employees & Community

  • Resources for referring providers
  • Refer a patient online
  • Request a consult
  • Clinical Trials
  • About us
  • Join our team
  • Employee updates
  • Nondiscrimination Notice
  • HIPAA Notice of Privacy Practice
  • Web Privacy Policy
  • Accessibility
  • University of Iowa Indigenous Land Acknowledgement
  • Translation services
  • Financial services
  • Patient Experience Office
  • Guest and Concierge Services
  • Spiritual services
  • Volunteer Services
  • Sitemap
  • cancer.uiowa.edu
  • uihealthcare.org
  • medicine.uiowa.edu
  • medicineiowa.org
Copyright © 2023

The University of Iowa. All Rights Reserved.

University of Iowa Stead Family Children’s Hospital is part of University of Iowa Hospitals & Clinics.