The neuromuscular specialists at UI Stead Family Children’s Hospital work closely with other pediatric specialties, including cardiology, pulmonology, and endocrinology to provide a team-based approach for neuromuscular patients with complex medical needs.
What sets us apart?
Recognized Muscular Dystrophy Association (MDA) Care Center:
The Muscular Dystrophy Association has recognized UI Stead Family Children’s Hospital amongst the top 150 health care institutions for neuromuscular disease care
Parent Project Muscular Dystrophy (PPMD) Certified Duchenne Care Center:
This recognition certifies that the neuromuscular clinic at UI Stead Family Children’s Hospital has met the requirements for providing optimal care and services for those with Duchenne Muscular Dystrophy.
Participation in the latest clinical trials for neuromuscular conditions, expanding patients’ options for treatment and helping researchers understand more about these diseases.
University of Iowa Senator Paul D. Wellstone Muscular Dystrophy Specialized Research Center:
We are dedicated to improving outcomes and treatments for these diseases. The research will continue to improve the clinical care and outcomes for patients today and in the future.
The neuromuscular multispecialty clinic provides expert care for all neuromuscular conditions, including (but not limited to):
- Muscular dystrophies
- Spinal muscular atrophy and related diseases
- Congenital myopathies
- Friedreich ataxia
- Myasthenia gravis, acquired or genetic
- Nerve diseases
Our patients participate in FDA-approved advanced treatment for neuromuscular conditions, including:
- Gene replacement for Spinal Muscular Atrophy
- Exon Skipping therapies for Duchenne Muscular Dystrophy
Clinical Research Trials
Neuromuscular disease patients are invited to participate in clinical research trials. Clinical research includes observational and natural history studies, and interventional trials of potential new treatments. Research opportunities vary by disease, speak with your provider about what is available for your child, or browse open clinical trials here. (link to clinical trials – with pediatric filter)
In addition, the neuromuscular clinical team helps with:
- Overall medical management of their specific condition
- Care coordination and family support
- Genetic counseling
- Physical therapy evaluation
- Nutritional consultation
- Connection to patient advocacy groups
- Clinical research studies