Neuromuscular Multispecialty Clinic

The Stead Family Children’s Hospital multidisciplinary neuromuscular clinic serves neuromuscular patients from childhood to adulthood.
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1-888-573-5437

The neuromuscular specialists at Stead Family Children’s Hospital work closely with other pediatric specialties, including cardiology, pulmonology, and endocrinology to provide a team-based approach for neuromuscular patients with complex medical needs.

 

What sets us apart?

Recognized Muscular Dystrophy Association (MDA) Care Center:

The Muscular Dystrophy Association has recognized Stead Family Children’s Hospital amongst the top 150 health care institutions for neuromuscular disease care

Parent Project Muscular Dystrophy (PPMD) Certified Duchenne Care Center:

This recognition certifies that the neuromuscular clinic at Stead Family Children’s Hospital has met the requirements for providing optimal care and services for those with Duchenne Muscular Dystrophy.   

Clinical Trials:

Participation in the latest clinical trials for neuromuscular conditions, expanding patients’ options for treatment and helping researchers understand more about these diseases.

University of Iowa Senator Paul D. Wellstone Muscular Dystrophy Specialized Research Center:

We are dedicated to improving outcomes and treatments for these diseases. The research will continue to improve the clinical care and outcomes for patients today and in the future.

The neuromuscular multispecialty clinic provides expert care for all neuromuscular conditions, including (but not limited to):

  • Muscular dystrophies
  • Spinal muscular atrophy and related diseases
  • Congenital myopathies
  • Friedreich ataxia
  • Myasthenia gravis, acquired or genetic
  • Nerve diseases

Our patients participate in FDA-approved advanced treatment for neuromuscular conditions, including:

  • Gene replacement for Spinal Muscular Atrophy 
  • Exon Skipping therapies for Duchenne Muscular Dystrophy

Clinical Research Trials

Neuromuscular disease patients are invited to participate in clinical research trials. Clinical research includes observational and natural history studies, and interventional trials of potential new treatments. Research opportunities vary by disease, speak with your provider about what is available for your child, or browse open clinical trials.

In addition, the neuromuscular clinical team helps with:

  • Overall medical management of their specific condition
  • Care coordination and family support
  • Genetic counseling
  • Physical therapy evaluation
  • Nutritional consultation
  • Connection to patient advocacy groups
  • Clinical research studies

Not sure which Neuromuscular Multispecialty Clinic provider is right for you?

When you call 1-888-573-5437 we'll help you find a provider who meets your needs.
Call 1-888-573-5437

Locations and Offices

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Patient Stories

Greenfield Kid Captain beats the clock to receive new gene therapy
October 13, 2025
Micah Norby was the first child in Iowa outside of clinical trials to receive gene therapy for Duchenne muscular dystrophy.
Kid Captain Micah Norby
Meet Kid Captain Dylan McGivern
November 21, 2022
Dylan wasn’t meeting developmental milestones for his age so his local pediatrician referred him to University of Iowa Stead Family Children’s Hospita...
Dylan McGivern banner

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Gene therapy reverses muscular dystrophy in mice
July 11, 2022
Gene therapy was able to repair severely damaged muscle and significantly improved the survival of mice with a particular type of muscular dystrophy, ...