Pediatric Heart Disease
University of Iowa Health Care Stead Family Children’s Hospital’s pediatric heart disease team provides expert evaluation, diagnosis, and treatment for children with congenital (present at birth) and acquired (developed later) heart disease. We care for patients from before birth through childhood, adolescence, and into adulthood, offering continuity and specialized care as needs change over time.
Our specialists deliver comprehensive heart care through one coordinated program, helping families avoid gaps in care and unnecessary travel. As the only team in Iowa providing full-spectrum care for children and adults born with heart defects, we offer access to advanced expertise and long‑term follow‑up close to home.
Lifelong heart care for children and families
From the earliest diagnosis through adulthood, your child’s care is guided by a team experienced in how heart conditions evolve over time. When a condition is identified before birth, we work closely with maternal–fetal medicine specialists and neonatologists to plan delivery and newborn care. After birth, pediatric cardiologists, surgeons, and advanced practice providers coordinate treatment and follow-up.
As your child grows, we provide ongoing care to support long‑term heart health. This may include monitoring, medical management, or surgery when needed. For children with more complex conditions, interstage monitoring programs offer education and support for families between surgeries, helping care continue smoothly at every stage.
Collaborative, whole-person care
Our pediatric heart disease program supports the whole child and family, with access to specialists who address nutrition, emotional health, development, and everyday needs. This team‑based approach helps families navigate care with added guidance and support throughout diagnosis, treatment, and follow‑up.
For families traveling from outside Iowa City, we help connect you with housing options, sibling support, and resources such as the Ronald McDonald House. Many members of our team are deeply connected to Iowa and committed to caring for families across the state. Our goal is for every child and parent to feel heard, supported, and cared for, regardless of the complexity of heart condition.
A minimally invasive approach to care
Whenever possible, we use minimally invasive techniques to diagnose and treat pediatric heart conditions. Care often begins with noninvasive testing — such as an electrocardiogram and an echocardiogram — to evaluate heart rhythm and structure. When additional detail is needed, advanced imaging helps guide treatment while limiting risk.
Many conditions that once required open‑heart surgery can now be treated using catheter‑based procedures. These approaches may involve smaller incisions, shorter hospital stays, and faster recovery. Our specialists perform minimally invasive treatments for even very small and medically complex patients, including closing heart defects in tiny infants and placing heart valves without open surgery. When surgery or long‑term support is needed, care is closely coordinated with heart failure, electrophysiology, and transplant teams to guide the most appropriate treatment plan.
Pediatric heart disease tests and treatments
- Electrocardiogram (EKG)
- Echocardiogram
- Cardiac MRI or CT
- Cardiac catheterization
- Minimally invasive valve or vessel repair
- Medication management for heart failure
- Interstage monitoring
Types of pediatric heart diseases we treat
- Aortic valvar stenosis (AS)
- Atrial septal defect (ASD)
- Atrioventricular septal defect (AV canal defect)
- Cardiac tumors
- Coarctation of the aorta
- Cyanotic heart disease
- Ebstein anomaly
- Fetal heart conditions
- Hypoplastic left heart syndrome (HLHS)
- Interrupted aortic arch (IAA)
- Patent ductus arteriosus (PDA)
- Partial anomalous pulmonary venous return (PAPVR)
- Pulmonary atresia (PA)
- Pulmonary valve stenosis (PS)
- Single‑ventricle heart disease
- Tetralogy of Fallot
- Transposition of the great arteries
- Tricuspid atresia
- Truncus arteriosus
- Vascular ring and sling
- Ventricular septal defect (VSD)
Our Care Team
Our pediatric cardiology experts provide compassionate, state-of-the-art care for infants, children, and adults living with congenital and pediatric heart disease.
Need heart care for your child?
Support Groups
Heart Friends supports parents, siblings, and caregivers of children with congenital or acquired heart disease. A child’s heart condition is more than a medical experience. It affects every aspect of family life. Heart Friends gives you a community of families who truly understand, helping you find emotional support, educational tools, and social connections when it matters most.
What is Heart Friends?
Heart Friends is a statewide network for families receiving cardiac care at University of Iowa Health Care Stead Family Children’s Hospital, with chapters across Iowa.
With a mission to provide emotional and educational support, raise awareness of congenital heart disease, and build a strong community for families at every stage of the heart-care journey, Heart Friends offers:
- Emotional support and mentoring through peer connection with other families who have walked similar paths.
- Educational events that give you reliable information about congenital heart defects, treatments, and long-term care.
- Social gatherings and chapter events so your children and your family can meet others and just have fun.
All families have different needs, so we allow you to join at any point in your child's heart journey when you are ready to share with others. What we do is create connection, awareness, and a place where you feel heard and understood.
When to join Heart Friends
You may find Heart Friends helpful:
- When your child is newly diagnosed with a heart condition, and you’re looking for support and guidance.
- When you’re facing surgery or complex care and want families who’ve been there.
- When you’re feeling isolated, want to connect with other siblings or caregivers, or need educational resources.
- Even when your child is stable, but you want to join a community with social events and children’s activities with peers who understand.
If at any point in your heart-care journey you feel you’d benefit from connection, reassurance, or resources — it’s a good time to join.
What to expect
When you become part of Heart Friends, you’ll have access to:
- Chapters in multiple regions (UIHC, Dubuque chapter, Waterloo chapter and Central Iowa chapter) with local event invitations.
- Welcome materials and social media options
- Social gatherings (annual CHD Day events, sporting events, family events, parent events, and more!) where you and your children can meet others.
- Opportunities to volunteer or support awareness efforts if you’d like to give back.
Our program allows you to participate at your own pace and according to what your family needs.
Donate to Heart Friends
We are grateful for the many generous individuals and organizations who wish to bring cheer and comfort to our young patients and their families. You often ask how you can help. The biggest impact you can make is through a monetary donation to the Stead Family Children’s Hospital Fund. This fund provides support for the most urgent needs of Stead Family Children’s Hospital.
Give now
Heart Friends Support Group Contacts
UI Health Care Chapter
Trudy Pierick
[email protected]
Dubuque Chapter
Jesi Duve
[email protected]
Lindsey Schueller
[email protected]
Waterloo Chapter
Molly Burns
[email protected]
Kris Messner
[email protected]
Central Iowa Chapter
Brittany Devereaux
[email protected]
Autumn Wolbert
[email protected]