University of Iowa Hospitals and Clinics coordinates the diagnosis, treatment, and counseling of individuals and families coping with Huntington disease or at risk for Huntington disease. Our multidisciplinary team offers a full range of services including assessment of the three primary areas affected by the disease:
- Cognitive assessment: Strengths and weaknesses in the thinking processes are evaluated by a neuropsychologist.
- Functional and behavioral assessment: Current mood and level of day-to-day functioning is evaluated by a psychiatrist.
- Motor assessment: Movement (chorea), posturing, rigidity, and balance are evaluated by a neurologist.
Patients and their families will also be assessed for other health care needs such as speech therapy or genetic counseling and testing at the clinic.
The clinic also provides presymptomatic genetic testing and counseling to people who have a family history of Huntington disease. This allows people who are at risk for Huntington disease know if they will develop symptoms at some point in the future. We follow Huntington's Disease Society of America guidelines for presymptomatic testing to provide people support and education during this difficult process.
Huntington's Disease Society of America Center of Excellence
The Huntington Disease Clinic is one of several services offered by the University of Iowa Huntington's Disease Society of America Center of Excellence. The Huntington's Disease Society of America has designated the University of Iowa as one of 21 centers at major academic facilities throughout the United States where people with Huntington disease and their families receive comprehensive medical, psychological, and social services as well as physical therapy, occupational therapy, and genetic counseling.
Huntington Disease Resources
- A Physician’s Guide to the Management of Huntington’s Disease (3rd edition) was co-written by Jane Paulsen, PhD, co-director of the University of Iowa Huntington's Disease Society of America. This guide is available for download from the Huntington’s Disease Society of America.
- HOPES: Huntington's Outreach Project for Education at Stanford
- Huntington's Disease Lighthouse Family
- Huntington's Disease Society of America - Iowa Chapter
- Huntington’s Disease Youth Organization (HDYO)
The above websites may be useful to individuals with Huntington disease, their families, and their friends. In providing these websites, the University of Iowa Huntington's Disease Society of America Center of Excellence is not endorsing any particular opinions about Huntington disease or its treatment that may be expressed at these websites. Please consult our Huntington Disease Clinic health care providers or other appropriate health care providers regarding any advice, treatment, or therapy.