Our multidisciplinary team offers a full range of services including assessment of the three primary areas affected by the disease
Strengths and weaknesses in the thinking processes are evaluated by a neuropsychologist
Functional and behavioral assessment
Current mood and level of day-to-day functioning is evaluated by a psychiatrist
Movement (chorea), posturing, rigidity, and balance are evaluated by a neurologist.
Patients and their families will also be assessed for other health care needs such as speech therapy or genetic counseling and testing at the clinic.
We also provide presymptomatic genetic testing and counseling to people who have a family history of Huntington's disease. This allows people who are at risk for Huntington's disease know if they will develop symptoms at some point in the future. We follow Huntington's Disease Society of America guidelines for presymptomatic testing to provide people support and education during this difficult process.
Children with juvenile onset Huntington's Disease receive care at University of Iowa Stead Family Children's Hospital.
Huntington's Disease Society of America Center of Excellence
The Huntington's Disease Clinic is one of several services offered by the University of Iowa Huntington's Disease Society of America Center of Excellence. The Huntington's Disease Society of America has designated the University of Iowa as one of 56 centers at major academic facilities throughout the United States where people with Huntington's disease and their families receive comprehensive medical, psychological, and social services as well as physical therapy, occupational therapy, and genetic counseling.
Huntington's Disease Resources
Huntington’s disease management:
- A Physician’s Guide to the Management of Huntington’s Disease (3rd edition)
- HOPES: Huntington's Outreach Project for Education at Stanford
Connect with others impacted
For those under 35:
Living at risk:
The Huntington's Disease Support Group provides an opportunity for individuals at risk for, affected by, or caregivers of Huntington’s disease (HD). The facilitators strive to create an environment that encourages sharing, learning, and bonding with others impacted by HD.
Occasionally, outside speakers are invited to discuss topics such as nutrition, physical therapy, long-term care planning, financial planning, and much more. We encourage anyone impacted by HD to attend.
These support groups are held 100% online using the Zoom video conferencing platform. A link to participate will be emailed to you prior to the group meeting.
If you are not familiar with how to utilize the Zoom video conference platform, a brief (10 min.) YouTube video explaining the process can be accessed by using the hyperlink below.
If you are interested in participating, please email [email protected].